Published by
National Register for Congenital Heart Defects
Augustenburger Platz 1
13353 Berlin

Phone: +49 30 4593-7277
Fax: +49 30 4593-7278
E-Mail: info(at)

Overall responsibility
Dr. med. Ulrike Bauer (Project coordinator)

Wiebke Lesch

Editorial offices

Hermine Nock
PD Dr. Elisabeth Sticker

Marit Haugdahl
Marte A. Jystad

Maria Escudero
Marta Medina

Ulrika Hallin
Peter Nordqvist


Oliver Berg

The specialised articles on this website were written by medical experts and patients/parents, and are intended for people affected by congenital heart defects and their families, the interested public, doctors, medical staff and the media.

Corience is sponsored by the European Union as part of its Seventh Framework Programme. The objective of this web portal is to provide comprehensible information about congenital heart defects and answers to everyday questions regarding this disease. In addition, we seek to foster the spirit of co-operation and mutual learning between patients, their parents, doctors and scientists.

Legal information

1. Disclaimer

Knowledge in the field of medicine is subject to continuous change as research progresses and clinical experience is gained. The authors and experts of this website take great care to present factual information in a form that can be easily understood. By no means does the information provided by corience substitute a personal examination or diagnosis performed by a doctor. No liability is therefore accepted for content made available by the operators of this website, nor for contributions made by authors and experts, except in cases of deliberate or grossly negligent misinformation. The same applies to content made available by third parties, which are merely linked to this website. All offers are subject to change and are not binding. The author expressly reserves the right to amend, update, delete or (temporarily or permanently) cease the publication of parts or all of this website without prior notice.

2. References and links

The author accepts no liability for direct or indirect references to third-party websites (hyperlinks) outside the author’s area of responsibility. The author hereby states that there was no recognisable illegal content on any of the linked web pages at the time of placing the link. The author has no influence whatsoever on the current and future design, content or authorship of the linked websites. The author therefore dissociates themselves explicitly from any content of any linked pages which were modified after the time of linkage. This holds true for all links and references within this website. Any illegal, incorrect or incomplete information, and especially any damages caused by the usage or non-usage of that information, is the sole responsibility of the provider of the linked page, not the referrer to that page.

3. Copyright

All texts and images and the layout of these web pages are protected worldwide by copyright law. The contents of this website may be used for private purposes. To use the texts for other purposes, permission must be obtained from the owner of this website. All product designations and trade names mentioned on this website are the property of their respective owners and are as such protected by trademark and/or patent law. The right of reply may be exercised only under the terms specified in §10 of the German interstate treaty on media services (MdStV).

4. Data protection

In cases where users have the opportunity to enter personal or business details (names, e-mail or postal addresses) on this website, the provision of such data by the user is expressly voluntary. Third parties may not use contact details published in the editorial notes or a comparable section of this website (such as e-mail and postal addresses, or telephone and fax numbers) to send any information not explicitly requested by the person concerned. We explicitly reserve the right to press legal charges against senders of so-called spam mails who violate this ban.

5. Web analytics

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6. Severability clause

Should one of the above clauses/provisions be or become entirely or partly invalid on the basis of legal regulations and directives or due to changes in legislation, it shall be substituted by whichever valid clause or provision most closely approximates the intended purpose of the original. The remaining provisions shall not be affected, and shall continue to be valid and enforceable to the fullest extent permitted by law.