ECHDO and Corience joint workshop in Barcelona, Spain
During various guided workshops, the delegates will be given the opportunity to get in touch with similar organisations from all over Europe for building up a strong European network. They will be able to exchange experiences and learn from other organisations’ success stories. The meeting aims to connect all members of the community to enhance debate and discussion about important issues. Central topics will include the development of network cooperation, parent advocacy and fundraising.
Time: June 19–20, 2009
Place: UAB Casa Convalescència
St.Antoni Maria Claret, 171
Barcelona, Spain
Agenda
Friday, June 19, 2009
ECHDO Meeting Casa Convalescencia
| Time | Title | Speaker(s) |
|---|---|---|
| 9.00–9.10 | Welcome | R Camp |
| 9.10–9.30 | The Pros & Cons of Federations | U Wallentin, President OIFE |
| 9.30–12.00 | Discussion in parallel working groups (ECHDO and Euro-HSP) - Statutes - Settlement of Organisation - Constitution of Board | |
| 12.00–12.30 | Report back (15 min. each) | |
| 12.30–13.30 | Lunch | |
| 13.30–14.15 | Wiki/internet and other work issues | D Costello, Webmaster Eurordis |
| 14.15–15.00 | Fundraising | TBC |
| 15.00–15.30 | Coffee break | |
| 15.30-17.00 | Advocacy Workshop: - Introduction to Advocacy - How to influence policy makers - Do patients have influence - how and when? - Consumer Activism - Empowering the community - Emergence, Institutionalisaton and Fragmentation – lessons learned from HIV activism in Barcelona | J Dart, President DEBra |
| 17.00–17.30 | Resume of day / ways forward | K De Rijcke, President CFE |
| 17.30–17.45 | Next steps | R Camp |
Saturday, June 20, 2009
Corience Meeting Casa Convalescencia
| Time | Title | Speaker(s) |
|---|---|---|
| 9.00–9.10 | Welcome | |
| 9.10–10.15 | Reports on ECHDO and Corience, achievements and perspectives | M Escudero, W Lesch |
| 10.15–10.30 | Coffee Break | |
| 10.30–11.30 | Interactive: Brief introduction of organisations and representatives, which one/who is new? Developments since Berlin November 2009, feedback, experiences, exchange, discussion | |
| 11.30–12.30 | New Developments in therapy and health care - The Melody Valve | Prof. Dr. Hess, German Heart Center Munich, Germany |
| 12.30–13.30 | Lunch | |
| 13.30–14.30 | New Developments in therapy and health care - Self management for anticoagulation for children and adults | Ines Hartwig-Zaidan, MTBASA Berlin, Germany |
| 14.30–15.00 | Conclusions & Next Steps | M Escudero, H Nock |
| 15.00–15.30 | Farewell-Coffee |
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