Local support organisations in Germany

Bundesverband Herzkranke Kinder e. V.

Members 3000 families
Main Goals
  • Support for families with patients with congenital heart disease
  • Exchange of information—self-help groups, professional helpers (clinics) and rehabilitation
  • Integrate children and adults with congenital heart disease into society
  • Research into congenital heart diseases
  • Psycho-social and legal advice
  • Raise public awareness for children with congenital heart disease and chronic illness
  • Family-orientated rehabilitation, Sports-camps - eg, horseback-riding weeks, sailing camps
  • Organise meetings and symposia
Contact Bundesverband Herzkranke Kinder e.V.
Mrs Hermine Nock
Kasinostr. 66
52066 Aachen
E-Mail bvhk-aachen(at)t-online.de
Phone +49 241 9123 32
Web www.bvhk.de

Bundesvereinigung JEMAH e. V.

Members 350
Main Goals

To improve the care and treatment of adults with congenital heart disease in Germany

Contact Bundesvereinigung JEMAH e.V.
c/o Heike Appold
Bergstr. 16
97320 Mainstockheim
E-Mail info(at)jemah.de
Phone +49 9321 268905
Web www.jemah.de