About Corience

Corience is a website dedicated to congenital heart defects (CoHD). Patients and relatives can access Corience for in-depth information and useful tips on how to make life with CoHD easier.

Accessible, easy to understand, interactive, and full of information, Corience addresses patients, parents, doctors, and scientists alike. Interviews and patient stories from all across Europe offer an inside view on how people with different backgrounds deal with this disease. Researchers and other interested persons can access Corience for up-to-date information on the latest medical and scientific developments.

Medical experts and representatives of parent organisations update the information on Corience regularly, covering a comprehensive range of topics and perspectives.

By providing information that is objective, transparent, and independent, Corience wants to empower patients and their families and contribute to a better quality of life for everyone affected by a congenital heart defect.

Worldwide, there is a lack of information concerning the long-term outlook for patients with congenital heart defects. What little information there is, rarely comes from systematic studies.

Doctors, scientists, parents and self-help associations have long been aware of this information gap and the need to close it. Only by working together can they collect a sufficient number of cases to provide the basis for high quality research.

Corience supports this cooperative spirit and wishes to contribute to and promote scientific research and developments.

In the past, a heart defect usually meant a shorter lifespan. Thanks to medical progress, people with CoHD now enjoy a significantly higher life expectancy. However, they and their families face many issues, both medical and social.

Patients and their families experience different standards throughout Europe and there is a lot of work to be done before everyone born with a heart condition receives the standard of care and treatment they deserve.